| Title | Community-Based Participatory Research (CBPR) to Enhance Participation of Racial/Ethnic Minorities in Clinical Trials: A 10-Year Systematic Review |
| Publication Type | Journal Article |
| Year of Publication | 2022 |
| Authors | McFarlane SJulian, Occa A, Peng W, Awonuga O, Morgan SE |
| Journal | Health CommunicationHealth Communication |
| Volume | 37 |
| Pagination | 1075-1092 |
| Type of Article | Article |
| ISBN Number | 10410236 |
| Accession Number | 157567032 |
| Keywords | CINAHL database, clinical trials, communication, Communities, Diversity in clinical trials, EMPIRICAL research, Ethnic Groups, HUMAN research subjects, MEDLINE, Minority participation, Online information services, Patient selection, Systematic reviews |
| Abstract | There has not been a significant improvement in the rate of clinical trial accrual in more than 20 years. Worse, the challenge of inadequate representation among racial and ethnic minorities also persists, deepening disparities in health. Community-Based Participatory Research (CBPR) is a participatory communication method that centers on effective dialogue between researchers and community stakeholders with the goal of creating an equitable partnership for health and social change. The objective of the current study was to provide an update since a systematic review in 2012, on the current status of the empirical research, with a particular focus on the elements of CBPR methods used to improve the rate of accrual of members of racial and ethnic minority communities for clinical trials. Our systematic review found a large increase in the number of CBPR related studies and studies related to racial and ethnic representation in research. More than 85% of studies employing CBPR methods saw statistically positive outcomes. Specifically, the elements of CBPR that are associated with these positive outcomes include community partner participation in (1) a study advisory committee, (2) data collection, (3) the development of interventions, and (4) participant recruitment. However, the results of our study indicate that researchers need to be more transparent about the extent of community participation as well as more thoroughly and accurately describe the nature of the partnership with members of minority communities in order to build upon the scientific literature on community-engaged methods. [ABSTRACT FROM AUTHOR] Copyright of Health Communication is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) |
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